U.S. Department of Health and Human Services
NATIONAL INSTITUTES OF HEALTH NIH News
National Center for Advancing Translational Sciences (NCATS) <
https://ncats.nih.gov/>
NIH Clinical Center (CC)<
http://clinicalcenter.nih.gov/>
For Immediate Release: Tuesday, February 16, 2016
CONTACT: NCATS Office of Communications, 301-435-0888, <e-mail:info@xxxxxxxxxxxxx>, NIH Clinical Center, 301-496-5789, <e-mail:Molly.freimuth@xxxxxxx>
MEDIA ADVISORY
NIH RARE DISEASE DAY EVENT, ON LEAP DAY (FEB. 29), WILL FEATURE PATIENT’S VOICE AND INTERNATIONAL COLLABORATION
WHY/WHAT:
On Feb. 29, NIH will host a Rare Disease Day event to raise awareness about rare diseases, the people they affect and current research collaborations. An estimated 25 million people in the United States have rare diseases. The event will feature presentations, posters, exhibits, an art show and tours of the NIH Clinical Center – a hospital at which researchers are studying nearly 600 rare diseases in partnership with over 30,000 patients. Admission is free and open to the public.
Agenda: <
http://bit.ly/1JYUEQ3>
Registration: <
http://bit.ly/1X45Z3d>
Watch the event live: <
https://videocast.nih.gov/>
Learn more:
https://ncats.nih.gov/rdd>
WHEN/WHERE:
February, 29, 2016
8:30 a.m. – 3:30 p.m.
NIH Clinical Center (Building 10) Masur Auditorium, 10 Center Dr., Bethesda, Maryland
WHO:
The event is hosted by the National Center for Advancing Translational Sciences <
https://ncats.nih.gov/> and the NIH Clinical Center <
http://clinicalcenter.nih.gov/>. Partner organizations include the U.S. Food and Drug Administration, National Organization for Rare Disorders, Genetic Alliance, Global Genes, Everylife Foundation for Rare Diseases, and Uplifting Athletes.
SPEAKERS WILL INCLUDE:
-- Congressman Leonard Lance, (NJ-07), co-chair of the Rare Disease Caucus
-- NIH Director Francis S. Collins, M.D., Ph.D.
-- NCATS Director Christopher P. Austin, M.D.
-- Gallin, M.D.
-- Patients will be available to tell their rare disease stories.
PRESS:
Members of the media should use contacts above for more information and to discuss interview, filming and photography opportunities.
The National Center for Advancing Translational Sciences is a distinctly different entity in the research ecosystem. Rather than targeting a particular disease or fundamental science, NCATS focuses on what is common across diseases and the translational process. The Center emphasizes innovation and deliverables, relying on the power of data and new technologies to develop, demonstrate and disseminate improvements in translational science that bring about tangible improvements in human health. For more information, visit <
https://ncats.nih.gov>.
The NIH Clinical Center is the clinical research hospital for the National Institutes of Health. Through clinical research, clinician-investigators translate laboratory discoveries into better treatments, therapies and interventions to improve the nation's health. More information: <
http://clinicalcenter.nih.gov>
About the National Institutes of Health (NIH): NIH, the nation's medical research agency, includes 27 Institutes and Centers and is a component of the U.S. Department of Health and Human Services. NIH is the primary federal agency conducting and supporting basic, clinical, and translational medical research, and is investigating the causes, treatments, and cures for both common and rare diseases. For more information about NIH and its programs, visit <www.nih.gov>.
NIH...Turning Discovery into Health -- Registered, U.S. Patent and Trademark Office
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The online version of this news release contains an image of the NIH Rare Disease Day logo <
http://www.nih.gov/2016/20160216-rare-disease-day-logo.jpg>
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